Big Picture Bioethics: Developing Democratic Policy in Contested Domains

1 Introduction; Susan Dodds and Rachel A. Ankeny.- Section I Seeing the Big Picture: Democratically Defensible Policy Development in Liberal Democracies.- 2 'Big Picture' Manifesto: Democratic Policy Making in Contested Domains; Susan Dodds and Rachel A. Ankeny.- 3 Participation and Trust: Conditions and Constraints on Democratic Deliberation; Susan Dodds.- 4 Conscience Votes in Australia: Deliberation and Representation; Kerry Ross, Susan Dodds and Rachel A. Ankeny.- 5 Deliberative Processes in Practice; Cobi Smith and Gene Rowe.- Section II Regulation of Embryo Research.- 6 Policy design for Human Embryo Research in Canada: 1989-2015; Francoise Baylis and Matthew Herder.- 7 Public Engagement and Deliberation in Human Embryo Research Governance in Australia 2001-2011; Susan Dodds and Rachel A. Ankeny.- Section III Human Research Ethics Guidelines.- 8 The Tunnel at the End of the Light? Development of the Tri Council Policy Statement in Canada; Jocelyn G. Downie and Cheluchi Onyemelukwe.- 9 Human Research Ethics Guidelines in Australia; Colin Thomson, Kerry Breen and Donald Chalmers.- 10 Consultation, Deliberation and the Review of the National Statement; Eliza Goddard and Susan Dodds.- Section IV Deliberating About Emerging Health Policy.- 11 Three Approaches to Chronic Fatigue Syndrome in the United Kingdom, Australia, and Canada: Lessons for Democratic Policy; Rachel A. Ankeny and Fiona J. Mackenzie.- 12 Seeking Community Views on Allocation of Scarce Resources in a Pandemic in Australia: Two Methods, Two Answers; Jackie M. Street, Helen Marshall, Annette J. Braunack-Mayer, Wendy A. Rogers, Philip Ryan and the FluViews Team.- 13 Assessing Deliberative Design of Public Input on British Columbia Biobanks; Michael M. Burgess, Holly Longstaff and Kieren O'Doherty

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• Ética e filosofia moral
• Bioética

policy development in liberal democracies;consience votes;legislating bioethics;democratic theory;regulation of embryo research;embryo research in Canada;human research ethics guidelines;consultation and deliberation;emerging health policies;clinical practice guidelines;chronic fatigue syndrome;deliberative processes;biobanks;deliberation and representation